Sunday, November 13, 2011

My Son Has Epilepsy.

Handsome and I just got home on Thursday from his fifth hospitalization in six weeks and I've spent the last two days cleaning the house from top to bottom. It still amazes me how dirty my house can get when it's just my husband and the kids here. The laundry especially. How on Earth do three children and one man go through four loads of laundry in three days? I don't mind the cleaning, but the laundry... UGH! I'm hoping this trip to the hospital is our last until at least after the holidays, because I really don't want to spend another weekend on Mount Washmore.

But most importantly, we are praying this last trip to the hospital is the one that saves our son from pro longed generalized tonic- clonic seizures.

Most of you know, that when Handsome was born he was admitted in the NICU for respiratory issues, but once he started breathing on his own, he didn't act "normal." His muscle tone was low and he didn't respond the way a newborn should. He was transported to a Children's Hospital, where he underwent extensive testing, before someone finally got the idea to run an EEG on him. At five weeks old, doctors discovered Handsome was epileptic. We spent another three weeks trying to find out why he was having seizures and how they could stop them, but eventually we were sent home without any answers.

Intractable Epilepsy with an underlying seizure disorder and hypotonia with unknown cause were written in his medical files and we were discharged.

We have spent many, many nights in the hospital, since then, have tried more medications then I can count on one hand, had every test come back negative, but he still seizes and he still continues to be developmentally delayed. It's been really hard on our family, but it's been even harder on Handsome.

I'm surrounded daily by heroes, living on a military base, but I have never been more proud to call someone my hero, until I met my youngest son. He is more then my hero, he is my angel. He has brought so much to all of our lives these last few months. He's taught us to enjoy our time together, to take nothing for granted. He's taught us the meaning of the words hope and strength. And he's reminded us to thank our Lord for each day he gives us.

Photobucket

No comments:

Post a Comment